I went ahead and mapped out all of the different temperature settings on the EVO's "clock" dial.
I then used the information from this post to figure out the optimal dial positions to maximize the anti-inflammatory effects of each ELB.
If you're interested in the dial positions I use, they are 9, 10, 11, 1, 2:30.
Want to get a rough idea of the impact that Crohn's and Colitis can have someone's life? Here is a super short documentary that does a pretty solid job of portraying that.
So this is the first super minor modification I've made since having this fantastic device for about 2 weeks. It's nothing special, I just doubled the neoprene heat shield over on itself since only the top half of the device gets hot.
Not only does it give double the insulation on the actual hot top half, but I also think it improves the overall aesthetics and usability of the device. Holding the bottom half of the plastic base feels much better without the neoprene sleeve sliding off.
I have another basic mod in mind for this particular vaporizer, but it involves a bit more work on my part before I share...
Just posting a heads up - at certain points I'll likely mention some of the alternative treatments I have attempted and that includes things that aren't totally accepted by all people. I'm mainly talking about medical marijuana and CBD oils, but maybe someone might take offense to my cold therapy experiments - who knows?
I just wanted to preface these future posts by acknowledging that while we may not always agree with each other, I still attempt to understand the other point(s) of view. So I simply ask that you please try to afford me the same luxury.
Gracias.
Edit: I think this is also an appropriate post to mention that in the future I may post product reviews and comparisons, and playing around with affiliate links in those posts is a possibility. I'll put a note at the bottom of those posts indicating the affiliate links if I decide to give it a shot.
The above video is a really good primer on what IBD (the broader term for Crohn's and Colitis) actually is. I highly recommend watching it to understand the core of this disease - it's short and easy to digest.
Now that you have an understanding of this disease, let's talk about flares. Flares for me consist of two main issues, internal pain and frequency/urgency to use the bathroom. There are two types of crippling pain that often leave me curled up in a fetal position, unable to move. One type feels like eating broken glass and rusty nails - it's more of a sharp shooting pain in my gut. The other is like getting thousands of little paper cuts inside your intestines and then having lemon juice poured on them - a slow burning that won’t go away.
I'm lucky since I don't experience pain quite as often as some other people with IBD (although my pain frequency seems to be increasing lately). What I do experience is LOTS of blood and mucus in my stool as well as an increased urgency and frequency to use the bathroom. Losing that much blood really takes it's toll on the body and tends to leave me exhausted a lot of the time.
In order to help you get a feel for what the frequency/urgency portion of a flare is like, I've put together a little experiment:
10…
9…
8…
7…
6…
5…
4…
3…
2…
1…
Didn’t quite make it? Dump the contents of the glass down the back of your pants. I hope you had a change of clothes with you or else you get to waddle your way back home, feeling every single eyeball staring at you and questioning how an adult managed to get themselves into such a shitty situation.
Even if you managed to make it this time, don’t get too comfortable… you’ll have to repeat this process 20 random times throughout your day in order to get a real understanding of what life is like with Crohn’s/Colitis.
Not fun.